About Ellie

One day when Ellie was just three, she got thirsty.

This unquenchable thirst landed Ellie at her pediatrician for testing. She was later diagnosed with Juvenile Diabetes. After this day Ellie's life would forever be changed.

Ellie’s mother, Beth, is a molecular biologist. True to her scientific nature she researched Type 1 diabetes and worked with Ellie's doctors to find the best approach to help her daughter. In the meantime, Ellie was doing her best to help others. Each year Ellie cuts the ribbon for the Juvenile Diabetes walk. A team walks in the Denver JDRF Walk to Cure Diabetes in honor of Ellie. The walk is right around the time of her birthday, so she asks everyone to be on her team in lieu of presents. To date Ellie has raised over $30,000 to help find a cure for Juvenile Diabetes.

Four years later when Ellie was seven she had a routine eye exam. During this exam the doctor was unable to correct her vision, so tests were ordered. Ellie was colorblind. After further testing Ellie was offically diagnosed with Wolfram Syndrome, a rare genetic disease that impacts only 1 in 700,000. When Ellie was diagnosed she was the only person with Wolfram Syndrome in the state of Colorado. Wolfram Syndrome causes blindness, hearing loss, and eventually it affects the brain stem, causing respiratory failure at an early age. With no current cure, the life expectancy of a patient is typically less than 30 years.

On Ellie's 11th birthday, she could no longer see the colors on her cake, but she sees everyday as a gift.

Ellie is now a teenager, and as she grows, ...

Ellie's dance group, The Silhouettes, preform on America's Got Talent

Ellie’s dance group, The Silhouettes, preform on America's Got Talent. The Silhouettes came in second on America's Got Talent sixth season. She used this public platform to bring awareness to Wolfram Syndrome. "Even though she's losing her hearing and vision, she can still dance." - Beth White, Ellie's mother [...]

Jocelyn Leroux to produce documentary about Ellie White

Jocelyn Leroux, a film maker, was touched by Ellie's story and approached Ellie's mother, Beth, about producing a documentary. [...]

Beth White establishes The Ellie White Foundation

All proceeds to the Ellie White Foundation will go toward research to find a cure for Wolfram Syndrome and other rare genetic disorders. [...]

Ellie preforms in Broadway hit Elf The Musical

In January of 2013, one of Ellie's dreams came true. Broadway was transformed into The Great Ellie White Way. [...]

Ellie attends Inauguration of President Barack Obama

Read all about Ellie's adventure in our country's capital, as told by her mother, Beth. [...]

The Ellie White Foundation is a 501(c)(3) public charity and so the full amount of any contribution you make will be deductible for federal income tax purposes.
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