The first ever Wolfram Syndrome Global Awareness Day - October 1st, 2021 !!! 

A HUGE Thank You! to everyone who supported the 2021 Birthday Bash!
It was a large success and it was great to see people in person again.

Welcome to the Ellie White Foundation For Rare Genetic Disorders

Meet Ellie White . She is far wiser than her teenage years may lead you to believe. Ellie is a beacon of hope. She strives to help raise awareness for her terminal disease, Wolfram Syndrome. Wolfram Syndrome causes blindness, hearing loss, and eventually it affects the brain stem, causing respiratory failure at an early age. With no current cure, the life expectancy of a patient is typically less than 30 years.

Learn more about Ellie and how you can .


August 5, 2021 - See Ellie's interview @ Overcoming the Odds | Aurora TV

The Ellie White Foundation is a 501(c)(3) public charity and so the full amount of any contribution you make will be deductible for federal income tax purposes.
Get Involved
A: P.O. Box 461754 Aurora, CO 80046
P: (303) 598-7633
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