Ellie in the news



Fitness For a Cause article on Ellie White's fundraising efforts.Fitness for a cause bootcamp is back this saturday, and we are excited to support the Ellie White Foundation....
Videos about Wolfram syndrome
Your Online Video Guide showcases many videos about Wolfram syndrome .....
FirstPost article on Ellie White

An EU Rare Diseases Registry for Wolfram syndrome, Alström syndrome, Bardet-Biedl syndrome and other rare diabetes syndromesIn the US, Ellie White has been dancing on America's Got Talent as part of the Silhouettes. The team have reached the top 4 of the competition! Ellie has spoken on the show about living with juvenile diabetes and Wolfram syndrome......

Adam Zwan, 25, is one of 18 people in the United States to be diagnosed with Wolfram Syndrome, a rare disease that steals the vision, hearing and before the age of 30 - the life - of those who have it.Wilmington Man One of 18 in US Fighting Wolfram's Syndrome, Which Will Steal His Vision, Hearing & Life.......


CBS Denver 4 reports on Ellie White and Worlfram syndrome
She looks just like any other child her age..... The diagnosis came after she got sick while on a camping trip with her family.....


Children's Diabetes Foundation at Denver
Your Hub Denver's article on ellie White raising $6500. for diabetes research.

Ellie White Foundation Scientific Research Board

Irene Carlson

Dr. Charles Dinarello Dr. Dinarello, MD.  On the scientific board of the Ellie White Foundation for Rare Genetic Diseases
Charles A. Dinarello is Professor of Medicine and Immunology at the University of Colorado School of Medicine, and Professor of Experimental Medicine at Radboud University in the Netherlands. Professor Dinarello received his medical degree from Yale University and clinical training at Massachusetts General Hospital. From 1971-1977, he was an investigator at the National Institutes of Health in Bethesda. Dr. Dinarello serves on the editorial boards of several scientific journals and has published over 600 original research articles and 250 reviews and book chapters on cytokines, particularly on Interleukin-1, Interleukin-18, and related cytokines. He has trained over 50 investigators, many of whom are recognized experts in their fields. The Institute for Scientific Information listed Dr. Dinarello as the world's 4th most-cited scientist during the 20 years from 1983-2002.

Dr. Jody Mathie, MD Dr. Jody Mathie, MD on teh Scientific Research board of the Ellie White Foundation for Rare Genetic Diseases


Dr. Jody Mathie, MD
graduated in 1981 from the university of Cincinnati college of Medicine. She is a board certified in Pediatrics. Dr. Mathie has 7 hospital affiliations: Swedish Medical Center, Presbyterian St. Luke's Medical, Rose Medical Center, The Children's Hospital Denver, Children's Hospital Aurora, Colorado, Spalding Rehabilitation Hospital. Dr. Mathie is affiliated with The Children`s Hospital University of Colorado Health Sciences Center (1985 - Present) Clinical Faculty.

 



Beth White
Beth White, Ellie White's mom and on the scientific research board of the Ellie White Foundation for Rare Genetic Disorders

Beth White is Ellie White's mom and a genetic research scientist at The University of Colorado Denver.











Lisa Patton