History / News



Amarantus Enters Into Wolfram's Research Collaboration With Washington University School of Medicine
"Amarantus Bioscience Holdings, Inc., (OTCQB:AMBS), a biotechnology company focused on the discovery and development of novel diagnostics and therapeutics related to endoplasmic reticulum stress, cell cycle dysregulation, neurodegeneration and apoptosis, today announced that it has entered into a research collaboration with the Washington University School of Medicine in St. Louis to evaluate the efficacy of MANF to treat Wolfram-Syndrome-induced blindness in animals. Dr. Fumihiko Urano, a researcher at the Washington University School of Medicine, will be leading the research..."






Controversial test allows parents to test embryos for genetic disorders
"Families who want to have a baby, but are fearful of passing on a genetic disorder, now have more options. A controversial test called Preimplantation Genetic Diagnosis allows parents going through in vitro fertilization to select embryos that do not carry certain gene mutations. With advancements in the last few years, PGD can now test for dozens of disorders. Beth White, of Golden, decided to go through the testing. Her first child, Ellie, was born with a rare genetic disorder called Wolfram Syndrome..."






Colo. girl raises awareness on National Diabetes Month   [video]
"KUSA - Ellie White is a 12-year-old from Colorado with diabetes and Wolfram Syndrome. She was recently on America's Got Talent on NBC. She is working to promote awareness of diabetes and wants parents to know the symptoms...."






James Beard Award Winners In Wilmington [for benefit to aid the Ellie White Foundation]
"Downtown Wilmington’s Manna restaurant is once again attracting top chefs from beyond the Cape Fear region. This time, it’s Public Television series star chef Vivian Howard of Chef & The Farmer restaurant in Kinston. Each year since 2012, Manna owner Billy Mellon has invited chefs to participate in a benefit to aid the Ellie White Foundation for Rare Genetic Disorders. The organization works to find cures for Wolfram syndrome and other diseases that receive little or no federal or private funding..."




Dinner - Thank You!

Beth & Ellie At The Dinner

Thank you to all those who supported the Ellie White Foundation at our 2014 Valentines Dinner. It was a magical night full of love and commitment to raising the money necessary to save lives!





Ellie White Foundation ABC7 News story

NEW YORK (WABC) -- There was an inspirational Broadway debut Friday night for an 11-year-old girl battling a life-threatening illness.
11-year-old Ellie White took center stage in "Elf the Musical"......






New york Daily News does story on Ellie White on Broadway in "Elf the Musical"
Ellie White, 11, suffers from Wolfram's syndrome, a rare disorder causing life-threatening respiratory problems. Ellie, who will perform in an ensemble role, says 'I'm not nervous at all'......





Inside Edition does story on Ellie White
She was the cute little girl from the dance group The Silhouettes who won our hearts onAmerica’s Got Talent. But behind her smile is a brave little girl battling a terminal illness.....



The Denver Post does a story on Ellie White's participation in the Juvenile Diabetes Walk
A crowd of more than 8,000 — in homemade team T-shirts in pink and green and glitter — bunched at the starting line for the JDRF Walk to Cure Diabetes on Sunday.......




Mail Online does story on Ellie White
Ellie White, 10, of Colorado, had recently taken her first ever surfing lesson, running into the surf and gingerly hopping on a board as she savors life before a rare, incurable disease robs her of her sight and hearing......




Encore Magazine article on Ellie White
As Far and Wide as the Universe Allows:
A fund-raiser for 10-year-old Ellie White takes place Friday......



WWAY-TV3 does a story on Ellie White taking surfing in Wilmington and her fundraiser
Three years ago a little girl with the world at her feet was diagnosed with a rare genetic disease with no cure. Now 10-year-old Ellie White hopes to build awareness and help others........



Wilmington Star News publishes article about Ellie White
A young girl's diagnosis prompts life of philanthropy....